زندگی با بیماریهای التهابی روده (IBD) چطوری میتونه راحتتر باشه؟
حتماً این سؤال براتون پیش اومده که با داشتن بیماریهای التهابی روده مثل Crohn’s disease (کرون) یا Ulcerative colitis (کولیت اولسروز)، چطور میشه زندگی عادی
داشت؟ I must say that yes, you can go to school, work, spend time with your friends and enjoy life. Here are some tips to help you live more easily.
Important tips for a better life with inflammatory bowel diseases:
Most people living with inflammatory bowel disease (IBD) must continue treatment for the rest of their lives. Symptoms may vary from mild to severe. You will experience periods of relapse (activation of symptoms) and periods of remission (relative health).Can I go to school, play sports, or hang out with my friends?
Yes definitely! You can still do most of the things you used to do. Of course, sometimes you need to make small changes or you need to change your plan a little when you are not feeling well. It is important to be flexible and take good care of yourself.
School and university and inflammatory bowel disease
Know that it doesn't matter if you are in school or university, because both places are full of activities and long hours. With inflammatory bowel disease, you may have days when your presence or performance is affected; That's why having a support program is very important.
You may get tired due to medical visits or relapses and you may not even be able to attend class all the time. So, it's always better to be prepared:
Emergency bag, including toilet paper, wipes, hand sanitizer, freezer bags (for wet clothes) and clean clothes.
Notifying teachers and school health officials about your condition and the symptoms of the disease. This information helps them better understand how they can
help you.
Sitting near the classroom door so that you can leave the classroom faster when necessary.
Ask friends to help you take notes if you miss class or a test.
Talking to teachers
When you have made a list of your needs, you can talk to your teachers to take some useful measures according to your situation at school. This
Actions can include:
Having the freedom to go to the bathroom whenever you need.
Permit to use private restrooms like those available in the health officer's office.
Determining a place to store emergency supplies, for example, near the toilet in the health officer's office.
Permission to use emergency drugs in the health officer's office.
Possibility to eat snacks and drink liquids during the day.
Getting help with group work or coursework such as exams, tests and projects.
Setting the time of course tests so that you can use the bathroom without worrying.
Record excused absences due to illness, medical appointments and treatment.
If needed, arrange a tutor to make up for missed lessons.
Who should I tell about my illness?
Honestly, the simple answer is "to whomever you want and as much as you like"but, well, it's not always that easy. It is up to you to decide about this and how much you want others to know. Who should know?
People like parents, guardians and school officials are usually better informed. If you are away from home, for example at university, you should have someone who can help when your doctor is not available. They should know your medical history, symptoms and emergency care you need.
People like your professor or boss, just need to know how your illness can affect your daily life. It is not necessary for them to know all the details, but it is better for them to have a general understanding of your situation.
Coping with inflammatory bowel diseases
The severity of the symptoms of this disease varies at different times and sometimes you may not even have any symptoms. But you cannot predict exactly when the symptoms will return.
If you are aware and take good care of yourself, IBD cannot limit your life.
Always remember: you are the same person as before and your value and ability are much more than this disease.
Accept inflammatory bowel disease but don't let it define your life! Keep doing what you like.Continue the activities you enjoyed before diagnosis and even try new activities.
If necessary, make some small changes and continue on your way.
Make friends with people who understand you and support you.
Be sure to exercise regularly with your doctor's advice. Exercise reduces stress, improves the overall health of your body, and helps the health of bones.
Always be ready!
Sometimes your illness may subside in a long period and you feel great. But remember that inflammatory bowel diseases are unpredictable. So it's better to always be ready. Carry an emergency bag with you that includes the following items: toilet paper, wet wipes, hand sanitizer, clean underwear, etc.
With the support of experts and IBD Specialists, you can live a better life!
Specialized IBD Center and Specialized Center for Inflammatory Bowel Disease, under the guidance of Dr. Ali Reza Sima, is ready to help you so that you can receive the best care. ℅ç RCrhn’s & Codes Care � � � � � � � t.
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